This video has been put together by the parents of Adeline, who started having seizures at 2 weeks of age.
After failing countless pharmaceutical options, at 10 months old Adeline was started on Cannabis Oil (CBD Oil) which instantly improved her seizure control and quality of life.
Now we are on CBD we are slowly trying to wean her high doses of pharmaceuticals, but this process can take months to do so.
It will not be until these drugs are completely out of her system, that we will be able to truly assess how CBD is helping Adeline to heal.
It should not have had to be this hard.
If CBD was a first line medication option for us, her seizures may have stopped at 5 weeks of age, she may have developed full vision and right now she may have been able to sit, hold on to toys, look us in the eyes or even walk.
Adeline cannot do any of those things.
It took far too long to get Adeline this medication.
What needs to change to get CBD as a first line option for paediatric epilepsy?
Better clinical trials.
This will enable a few things.
1.
Better and faster access to CBD 2.
Better education of the medical profession and wider community to reduce the stigma 3.
Government subsidisation of the medication so families can afford it (it is not cheap at $200-$400 for a 30-50ml bottle).
This video is a highlight of a longer 50-minute interview, which will become available in the coming weeks.
Since the recording of this video Adeline’s genetic results returned a diagnosis of CDKL5 deficiency which we were unaware of at the time of recording.
This diagnosis has a devastating prognosis, but we are still committed to managing her seizures using CBD Oil.
With all of this in mind, we have decided that the best way we can celebrate Adeline’s' first birthday on the 13 June 2021 is by advocating for change.
As such we have decided to raise funds towards clinical trials for CBD for paediatric epilepsy.
If you want to get behind the cause, here is the link: https://gofund.me/40d6cbc8 If you would like to access CBD for your child or yourself, these are the best contact people in Perth, Western Australia where we live: General access: Matt Shales and the MediCann Team M: +61 447 034 497 E: [email protected] W: https://www.medicannclinics.com.au/ Paediatric specialty: Dr Matty Moore 08 9746 3300 E: [email protected] Suite 4, 54 Dunn Bay Road Dunsborough, WA 6281 W: https://www.mattmooremd.com/ Video sponsors and gratitude to: Interviewer: James Reti from http://reticonsulting.net/ Videographer: Tay Kaka from https://www.mitpagency.com/ You can contact Anna Pitman directly on [email protected].
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- Look for high-quality, all-natural hemp extract
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- Read labels and do research before making a purchase
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One of the most common Zhou Ye looked at Ye Fan coldly in the sky, extremely angry, furious, but powerless. There are several common misconceptions and myths surrounding CBD gummies no corn syrup.